I don’t know why I haven’t been posting any updates. We have had a lot going on and this website was the last thing on my mind which it shouldn’t be. You all care so much about our journey and I promise to do better.
The second cycle of Chemo went off without a hitch last month……until the last week. Morgan was admitted for an infection and we had to spend about a week and a half in the hospital. It took our week off of everything and turned it into a long stay in the hospital. She was cleared for the infection but her ANC was low so we had to push chemo off for a few weeks.
During this time period, it was discovered that Morgan’s Grandma (Tom’s Mom) has been diagnosed with Bcell Non-Hodgkin’s Lymphoma. It’s a fast-growing large cell Lymphoma but the one that can be treated the most of all brain cancers. Obviously, this is a very hard time for us, but especially for my husband, Tom. He is very close to his Mom and we have really counted on her as a helper with Liam and Morgan. She has started chemo and we all continue to come together as a family and go at this battle stronger than ever. Since when did cancer become so normalized in our lives? UGHHHH
I found myself in a pretty dark place this week or so. I learned today that I was suffering from SCANXIETY. Due to Morgan’s infection, her planned scans were pushed out until yesterday and I was going insane. I wasn’t’ t sleeping, answering my phone, or making much contact to the outside world. GOOD NEWS: Her scans are looking great and the liver transplant team likes what the see! My biggest fear is losing the opportunity for a new liver so these good scans keeps her spot and allows her to keep moving up!
We went in today to check in to begin our 3rd Cycle but our numbers aren’t high enough so we have another weekend at home. She is doing awesome and her energy level has not wavered. She’s my hero.
I promise to update more.
